A more recent Hannah update

Hannah is doing much better. One month ago today we removed the NG tube. She was eating better and we wanted to see if her appetite would increase without the formula feedings. It was a success! She isn't eating and drinking as much as she used to, but it is enough to not need the tube back in her nose. Such a relief! That thing was a hassle. It would constantly leak and I do not miss waking up in a pool of formula on the bed.

She is making big improvements physically too. She can now crawl which has helped her to not become as frustrated through out the day. She can sit up on her own and play with her little brother. And by play I mean steal toys from him, but that's beyond the point. Last week she started to be able to pull herself up to standing with the help of furniture, which is a great milestone for her. She has therapy 3 times a week. Each week the therapists are impressed with her progress. It is reassuring to hear that other people see improvements in her as well.

Her ability to communicate is improving too. I can understand her most of the time and she is speaking more frequently. Her favorite thing to do these days is to read or be read to. When she was really sick she couldn't do much so we would read to her. Most of our day is spent reading the same books over and over, but luckily she has the books memorized so sometimes we get away with asking her to read to us. She is sleeping much better too. She sleeps in bed with us, our next goal is to get her back in her own bed.

Overall things are going well. She is happier, so we are happier.

Hanging out with her best bud Jack
This was hilarious. I put Liam down and when I came back downstairs I stumbled upon this Kodak moment. Jake and Hannah were both asleep, in pretty much the exact same position. One arm up over the head, one leg on the couch, the other leg hanging off the couch, mouth partially open. I love everything about this picture.

Hannah wearing a new dress that Grandma Geri got her. She looked beautiful in it.