We hoped and prayed that Hannah would miraculously get better over night. But as you all know, sometimes our prayers aren't answered the way we want them to be. It has been 8 long and challenging months since Hannah became very sick and was diagnosed with ACA. Each week she is progressing and performing everyday tasks a little better. To avoid despair, Jake and I learned to focus on how much she has improved since her time in the hospital. To compare Hannah to the perfectly healthy little girl she was last year is heartbreaking, but when we think back to how sick and helpless she was in January and February, we realize just how far she has come.
In January, Hannah didn't have the coordination to sit up, play, crawl, walk, speak, eat, or even control her eye movements. Hannah girl is light years better than she was during those scary months. For those of you who haven't seen or heard yet: Hannah is walking again! Three months ago, on May 31st, Hannah took about 10 steps on her own. She took off walking across the living room, stopped half way and exclaimed in the most jubilant voice "Hannah's walking!!!" and then preceded to take a few more steps. It was such an amazing moment of triumph for all of us, 5 long months in the making.
|Hannah in May when she still needed her walker and helmet to get around.|
|Hannah in September, loving every second of walking on her own again.|
Everyday we see more and more of the personality and joy that defined our little girl before we lost her for a time to Cerebellar Ataxia. Two Sunday's ago our family was getting ready to go to church. Hannah saw that everyone was getting dressed, so she announced "I'm gonna get dressed", and then went in her room and closed the door behind her. A few minutes later we decided to check on her. She had gone through her dresser, picked out a perfectly matched skirt and shirt, and started dressing herself. For most 3 year old's that is nothing out of the ordinary, but for Hannah this was a huge milestone she couldn't do for 8 months. She is back to some of her adorable habits of collecting her favorite toys and little treasures from around the house and putting them in a purse and carrying them with her everywhere she goes. A little quirk that I didn't know I missed until I saw her do it again.
She has been sleeping in her own bed for a few months now. Most nights she will wake up hysterical and I have to go in and calm her down but it doesn't take long to get her back asleep, which is a big improvement from months of sleepless nights. Overall her health, sweet demeanor, and everything Hannah loved to do is slowly within her reach again. Her patience with herself has been extraordinary. She has adapted to her limits and slowly tries to exceed them. We love you Hannah girl! Your strength and courage throughout this whole ordeal are inspiring.